“Stupidity cannot be cured with money, or through education, or by legislation. Stupidity is not a sin, the victim can't help being stupid...”
That’s the start of a quote by Robert Heinlein that came to mind as I read this from the L.A. Times
A Mother's Denial, a Daughter's Death
By Charles Ornstein and Daniel Costello Times Staff WritersSat Sep 24, 7:55 AM ET
Christine Maggiore was in prime form, engaging and articulate, when she explained to a Phoenix radio host in late March why she didn't believe HIV caused AIDS.
The HIV-positive mother of two laid out matter-of-factly why, even while pregnant, she hadn't taken HIV medications, and why she had never tested her children for the virus.
"Our children have excellent records of health," Maggiore said on the Air America program when asked about 7-year-old Charlie and 3-year-old Eliza Jane Scovill. "They've never had respiratory problems, flus, intractable colds, ear infections, nothing. So, our choices, however radical they may seem, are extremely well-founded."
Seven weeks later, Eliza Jane was dead.
The cause, according to a Sept. 15 report by the Los Angeles County coroner, was AIDS-related pneumonia.
These days, given advances in HIV care, it's highly unusual for any young child to die of AIDS. What makes Eliza Jane's death even more striking is that her mother is a high-profile, charismatic leader in a movement that challenges the basic medical understanding and treatment of acquired immune deficiency syndrome.
Even now, Maggiore, a 49-year-old former clothing executive from Van Nuys, stands by the views she has espoused on "The Ricki Lake Show" and ABC's "20/20," and in Newsweek and Mothering magazines. She and her husband, Robin Scovill, said they have concerns about the coroner's findings and are sending the report to an outside reviewer.
"I have been brought to my emotional knees, but not in regard to the science of this topic," said Maggiore, author of an iconoclastic book about AIDS that has sold 50,000 copies. "I am a devastated, broken, grieving mother, but I am not second-guessing or questioning my understanding of the issue."
One doctor involved with Eliza Jane's care told The Times he has been second-guessing himself since the day he learned of the little girl's death.
Dr. Jay Gordon, a Santa Monica pediatrician who had treated Eliza Jane since she was a year old, said he should have demanded that she be tested for human immunodeficiency virus when, 11 days before she died, Maggiore brought her in with an apparent ear infection.
"It's possible that the whole situation could have been changed if one of the doctors involved — one of the three doctors involved — had intervened," said Gordon, who himself acknowledges that HIV causes AIDS. "It's hindsight, Monday-morning quarterbacking, whatever you want to call it. Do I think I'm blameless in this? No, I'm not blameless."
Mainstream AIDS organizations, medical experts and ethicists, long confounded and distressed by this small but outspoken dissident movement, say Eliza Jane's death crystallizes their fears. The dissenters' message, they say, is not just wrong, it's deadly.
"This was a preventable death," said Dr. James Oleske, a New Jersey physician who never examined Eliza Jane but has treated hundreds of HIV-positive children. "I can tell you without any doubt that, at the outset of her illness, if she was appropriately evaluated, she would have been appropriately treated. She would not have died.
"You can't write a more sad and tragic story," Oleske said.
...
"Would I redo anything based on what happened?" she asked rhetorically during an interview this week. "I don't think I would. I think I acted with the best information and the best of intentions with all my heart."
...
Word Is Getting Out
Since Eliza Jane's death, Maggiore and her husband have kept a relatively low profile, her friends said. But word is slowly reaching HIV dissidents around the country.
Though shaken, most of them say they continue to support Maggiore and her contention that HIV is not the cause of AIDS.
For her part, Maggiore said that her daughter's death has taken a toll on her health; she's had trouble eating, sleeping and, this past summer, simply breathing. She's treated her symptoms with Chinese herbs, walked five miles a day and practiced yoga, and is now feeling better, she said.
She went to a sympathetic doctor, she said. "If I had gone to a regular AIDS doctor and told them I was HIV-positive, I have no doubt they would have blamed it on that."
In the weeks after Eliza Jane's death, her parents created a website, http://www.ejlovetour.com , in her memory. Maggiore wrote lovingly of her daughter, wavering between despair at her loss and acceptance that Eliza Jane had simply chosen, as Maggiore put it, to "go home."
She struggled most with the whys.
"Why our child — so appreciated, so held, so carefully nurtured — and not one ignored, abused or abandoned?" she wrote. "How come what we offered was not enough to keep her here when children with far less — impatient distracted parents, a small apartment on a busy street, extended day care, Oscar Mayer Lunchables — will happily stay?"
Why did I lead off with that Heinlein quote?
Because it ends like this.
“...But stupidity is the only universal capital crime; the sentence is death, there is no appeal and execution is carried out automatically and without pity." Robert Heinlein – “Time Enough for Love"
This, in one tragic nutshell, is what is so wrong and incredibly dangerous about True Believers, and why they should never, ever be allowed anywhere near the levers of power.
True Believers look like anybody.
Once nice woman who was with the Heaven’s Gate cult reminded me a whole lot of my Mom. Cheery woman, very sweet, enthusiastic and jokey, giddy that she had found such a nice bunch of young people to keep company with...and looking forward to the arrival of the Mothership like a five-year-old on Christmas Eve waiting for Santa Claus.
Just like my Mom, but with a single, blown chipset -- the one that keeps her from believe fatally crazy gibberish and stepping blissfully off into the grave -- and that woman is dead now, along with 38 others, who committed mass suicide in 1997.
Harlan Ellison, who has spend most of his life fighting this fight, wrote an essay about Heaven's Gate. About the lethal chasm between a rational approach to the Real World and the abyss of superstitious, magical thinking hysteria into which the True Believers all around us try to drag us.
He writes here specifically of the distinction between “science fiction” and “sci-fi”, but lets face it, icky-dumb atavistic hate-religion allied with fake science is more on the march than ever. The news is daily filled with the spectacle of adults throwing litigious tantrums demanding that infantile crap like Creationism be taken seriously and stories of pharmacists refusing to fill the birth control prescription for consenting adults on the basis of their “faith”.
Their faith seems to consist largely in the belief that slavering, pinheads speak for God Almighty because said pinhead are holding a Bible, have excellent hair and a Confederate accent and preach a faith that insists God’s Grace requires that you be born stupid and hateful, you stay stupid and hateful and you die stupid and hateful.
In such a world as this, Harlan’s essay seems more timely than ever.
Here’s a snip.
...
And that is the dichotomy of science fiction, as opposed to the tabloid mentality of UFO abductions, triangular-headed ETs, reinterpreted biblical apocrypha, and just plain bone stick stone gullibility. It is obscurantism and illiteracy, raised to the level of dogma. It requires that you be as ignorant today as you were yesterday, that you be no brighter than the sap who keeps playing three-card monte on a street corner with a hustler who will never cut you a break.
"Sci-fi" is what the Rancho Santa Fe sleepers bought, in that flashy but adolescent shell-game called Waitin' for the UFO. They were philosophical suckers who turned away from the genuine wonders of the real world and all its solvable mysteries, to embrace the sophomore horse-puckey of astrology and government conspiracies and recastings of Jesus as a deep-space navigator. That has nothing to do with the problem-solving and curiosity of science fiction...it has everything to do with the monster fear and dread produced by the dumbness of "sci-fi."
If you wonder why I have such an intractable loathing for Conservative Fundamentalists, this is what it comes down to. The simple fact that they are nothing more than Heaven’s Gate multiplied by a million, and in control of a nation armed with atomic weapons. The fact that, in addition to any number of hateful and bigoted doctrines, these people work for, pray for and deeply believe in the extinction of Life on Earth as a Good and Godly final coda to this wicked world.
They want the whole of humanity dead and the planet reduced to a rubble-strewn funeral pyre because then Jebus will come and take them away to Heaven, and they are as serious as cancer about doing their level best to trigger the end of the world. And for sordid political gains, a certain political party in the country keeps giving these people -- who are adamantly pro-Armageddon -- more and more power and letting them inch closer to control over US Foreign Policy and the nuclear launch codes.
When they succeed, True Believers usually end up dead and/or killing a lot of others: either way, they are Terminalists, believers in Final Answers and Last Chapters, and when the hour reaches Zero and the tumblers in their head all click into place, bad shit is about to come raining down on everyone in the blast radius.
That is the moment when, at a minimum, they’ll drag their kids out to Highway 61 for the Big Goodbye Sacrifice that the God of the True Believer always exacts in exchange for the keys to the Kingdom.
That is the moment you can be damned sure that somebody’s going to die.
Sometimes whole countries or peoples.
Sometimes 913 human beings in the jungles of Guyana.
Sometimes 39, dressed in their dorky purple capes and Nikes, believing that their souls would thumb a ride to Nirvana aboard the UFO they were convinced was trailing along in the wake of the Hale-Bopp comet.
Sometimes it’s just one child.
And that's when they succeed.
When they fail, they never learn. They cannot learn. Since they have abandoned the very concept of reordering their beliefs according to Reality, they have left themselves nowhere else to go but further down the rabbit hole.
They have cut out any self-correcting mechanism they might've once had, because the need for correction implies fault. Which implies doubt. And since True Believers cannot abide doubt in even trace amounts, they are left with:
"I am a devastated, broken, grieving mother, but I am not second-guessing or questioning my understanding of the issue."
They fall deeper into Psychotic Narcissism – which was all their True Belief ever was -- and maunder on about:
"Why our child — so appreciated, so held, so carefully nurtured — and not one ignored, abused or abandoned?" she wrote. "How come what we offered was not enough to keep her here when children with far less — impatient distracted parents, a small apartment on a busy street, extended day care, Oscar Mayer Lunchables — will happily stay?"
Listen to how utterly sick and self-absorbed this unhinged bitch has become. In her deluded theology, children die because they opt to, and children remain alive – even when faced with the unimaginable horrors of “extended day care, Oscar Mayer Lunchables” – only because they decide to “stay”.
When things don’t go according to plan – which is always -- True Believers never question themselves. They blame God or their Victim for somehow, magically, overriding their Perfect Dogma, and end up believing:
“...that Eliza Jane had simply chosen, as Maggiore put it, to "go home."
How fucking insidious.
This woman has fallen so fanatically in love with her own Perfect Dogma that she has destroyed any ability to judge whether or not her Dogma might possibly be in error.
And since her HIV Cult God cannot possibly be wrong...some alternative theory -- no matter how objectively monstrous and evil -- must be true.
It wasn't depraved indifference. It wasn't homicidal negligence. No, her daughter just “chose” to die for mysterious, magical reasons.
To which I can only add that it would be a great good if Ms. Maggiore would seriously consider “choosing” a "trip home" herself in the very near future.
Before her stupid True Belief kills anyone else.
61 comments:
As a parent,hell even before I was a parent,I never understood this kind of thing.Letting a child die as some sort of test or tribute to the parent's "faith".I don't know how anyone can do that,at least not without offing themselves at some point soon afterward.If one of my kids or my little grandbabies was sick,I'd move the heavens to do something,anything I could do to make it right,or at least better.
My contempt for the True Believers has probably grown to the point of unhealthy for me,but I have a grudge.That shit robbed me of family;parents,siblings,and much of my extended family.I suffered because of it,spent years trying to be"good"enough,to fit in a family so badly warped I would have had to destroy myself to be accepted.It almost worked.This kind of stuff can really ruin a person,the only way out is distance from it,so in that light,my family's disowning of me is probably the biggest gift they ever gave me and my kids.
to embrace the sophomore horse-puckey of astrology and government conspiracies and recastings of Jesus as a deep-space navigator.
Okay, I can't let this pass without comment. Just because astrology is one of things that informs my understanding of the world around me is no reason to compare someone such as myself to people whose ideas about life cause suffering death to their fellow humans.
I'm pretty well aware of the fact that when astrology is subjected to empirical testing, it gets cast in a very poor light. But I also contend that there are ways of understanding things that involve intuition and involve perceptions beyond the strictly logical, and just watch the temper-tantrums fly when you say that to Bolshevik skeptic. In a situation such as that, it really makes you question who the real "True Believer" is. Oh yeah, that's right, skeptic-atheists are Absolutely Right About Everything, so therefore Their Shit Doesn't Stink. (Hmmm, now where have I encountered that mentality before??)
I don't think the irrationalism of the rulers of the country is that they believe in the absurdities of their Christian Taliban base, but rather that they cynically, and also absurdly, think they can spin the Iraq war, and spin global warming, and spin science, and spin reality itself, to their liking, and that the spin is all that matters.
No one, no matter how alcoholic, who was raised in wealth, who was sent to Phillips Andover and Yale, given the best soft landings money and privilege can buy for all his failures since, and whose cynicism and natural talent have gained him, probably under the tutelage of his wife, a useful Lyndon Johnson accent he did not have at the beginning of his political career, could actually personally believe he will be raptured out of his happy world to another.
His irrationality is of a different order, thinking he can control the catastrophic events he has put in motion.
Terry Dolan-In-Denials???????????????????.
What huitzel says. The irrationality afoot as exhibited by our prez-e-dent only demonstrates the life lessons that he has learned. Mostly, that "if I say it, it's the same as doing -- problem solved, because, who will check? They'll never find out, and if they do, the grownups will fix it for me." This is pretty magical, and also , has worked for him in the past. Move this out into a wider arena, and it becomes, "no one is ever responsible for anything" -- Thus, all the attention and effort and money go to crafting the perfect speech, the perfect photo-op, the perfect loony "philosophy" of the PNAC, because, hey, if it doesn't work, so what? It looked good! And more millions to say it again, and louder will wear everyone down (like the "opposition" democrats) and they'll go along, and we win. What do they think they are winning?
Crumbling levees, crumbling everything, loot and plunder, unfunded mandates. Next he'll be giving a speech about dumping trillions of dollars on every US city, no one has to work, and ponies for everyone. Not that he means to do it. I shake my head and find it hard to accept that I'm not dreaming, that this shit can fly for 5 lonnggggg years
in the country that I thought was so much smarter, tougher, practical. That my own family members would become craven apologists for his every horrible uttering. It takes a lot of energy these days to hold on to hope, sanity, and the conviction that this too shall pass.
Sadly, this example is not the only one of its kind. And for these people, dogma has replaced reason, cognitive function. They're like Rainman: When harsh reality threatens their ordered lives, they just repeat "Who's on First?" and baseball statistics by rote in order to preserve that artificial order.
Except that Rainman didn't kill people.
Now, there's a time and a place for Christian Science, herbalists, holistic remedies, etc. God knows, modern medicine has been proven wrong and one should trust the pharmaceutical companies and the GOP who supports them as surely they Pfizer and their ilk support them. But these, I believe, should not be taken as anything other than alternatives to modern medicine.
And when you judgment is impaired to the point where your dogma threatens or, God forbid, actually contributes to the death of another human being, especially when it's your child, then you ought to be chemically castrated so you do not breed again...
...and then be introduced to large, ugly tatooed people with whom you should live for the rest of your life.
And that's the end of that rant.
I meant to say "should trust the pharmaceutical companies... about as much as one would trust a rattlesnake with a silence on its rattle."
It's been a long, sports-watching day (yes, even I have to take a break from blogging and politics once in a while. I cannot watch the sunday morning talking heads like you do, Drifty).
As a consequence, Assclowns of the Week will have to wait until at least tomorrow, since my darling wife accidentally deleted my word file for that post and now I have to chase down the original source material.
One of Heinlein's best quotes was, ...TANSTTAAFL." "There ain't no such thing as a free lunch." How true.
That's putting it mildly! In fact when tested it fails everytime! It has no predictive power. Only in hindsight when selecting for 'post hoc' results can you say it "is cast in a very poor light".
I don't use it to predict anything. Transits don't do much more than correspond to general spiritual themes that are taking place in an individual's life (especially WRT Saturn and Uranus transits).
Contend all you want, you cannot prove your way of knowing has any relevance to reality. Only selective memory and loose correlations give you any claim to plausiblity.
In other words, only left-brain-hemisphere-directed thinking is valid. Whatever.
When you can answer that honestly, you may understand skpetics.
I don't have much problem understanding skeptics. They seem to act out their natal charts more enthusiastically than most other people!
"Reality is that which, when you stop believing in it, doesn't go away."
Indeed. A Virgo Sun person is not any less a Virgo Sun person because his left-brain-hemisphere-directed thinking inclines him to discount his being a Virgo. (Which is kind of sad, because Virgo guys tend to be pretty awesome regardless of what they think of astrology, and they so often don't even know it due to their strictly rationalist predisposition.)
About Ms. Maggiore--two words: Darwin Award.
Yo. loveandlight. I have that "strictly rationalist predisposition" but I am NOT a Virgo. Guess which of the other 11 signs I am.
My ideas about what's true are based on that which I percieve as telling some kind of truth based on what I observe about life, and this comes from both my right brain hemisphere and my left brain hemisphere, so I can't really express that as some kind of mathematical formula that would satisfy your exacting standards. I'm sorry if that offends you for whatever reason, but I'm not going to lose any sleep over it. Like most zealots of any sort, you want to turn this into a game of "heads I win, tails you lose", and homey don't play dat.
For instance, if Fundie Xtianity turned out to be existentially true, I guess I'd just have to burn in Hell then, because it's teachings don't line up with what my heart (right brain hemisphere) and mind (left brain hemisphere) observes as truth and good sense about spiritual matters. (And by the way, I wouldn't wish some horrible fate on you for your ontological predisposition because 1) I wouldn't base my evaluation of whether or not you're a good or bad person on the fact that you think astrology, Tarot cards, Rael, and Fundie Xtianity all deserve to lumped into the same "hogwash" bin and 2) the ability to inflict pain and punishment certainly doesn't make truth, even if that ability should exist on the cosmic level (which goes back to what I said about me and Fundie Xtianity).
And that's "Mr.", not "Miss".
As for HIV==AIDS, Kerry Mullis, who won the Nobel Prize for inventing the polymerase chain reaction, which is used in DNA tests, including at least some HIV tests (and about which I know nothing), said a few years ago that he'd tried to find a citation for the statement he wanted to put in a paper he was writing, to the effect of, "It has been established that HIV causes AIDS." He was unable to find such a document, despite searching databases and asking people who ought to know. I remember when the HIV=>AIDS announcement was made, but naturally, I assumed this was based on gilt-edged research. No surprise that I can't find the evidence properly written up anywhere, but a Nobel laureate in the field of biochemistry? Surely if there were such a thing, he could have found it.
Anyway, I wonder if that situation's changed now, if there now is a peer-reviewed paper establishing that "HIV" is correctly named, and causes AIDS.
Otherwise, who's the True Believer?
-Fingal
(BTW, comments as "Other" appear not to work now.)
"True Believers" are of the same mentality, no matter what they truly believe in, including "skeptics" with their own brand of true belief.
DING DING DING!
When Saul became Paul, he didn't change his methods, only his stated allegiance. He was an intolerant asshole Before Damascus and he remained an intolerant asshole After Damascus.
Science deals with that which is amenable to scientific inquiry. That which is not testable by empirical means is not science, and frankly, scientists should keep a properly skeptical attitude toward such things.
Good scientists admit that the metaphysical parts of human experience outside of science cannot be evaluated by science. Good metaphysicians acknowledge that their beliefs cannot be evaluated by science, and they don't expect science to do so. The problem arises when either side tries to cross over to the other.
If one's metaphysics requires that certain beliefs be adopted that CAN be evaluated by science (such as "creationism" or the causality of AIDS), then one should be ready to change one's metaphysics to accommodate the scientific findings.
There you go. The smart religionists stay the hell away from science, just as the smart scientists stay the hell away from religion.
The biggest butchers in history were Mao Tse-Tung and Joe Stalin. Guess what? They were both atheists. George W. Bush, vile as he is, has a way to go before he reaches their records. (Though I doubt it'll be for lack of trying.)
My right brain was wrong! Hunh, imagine that!
Filtering information through layers of patriarchal assumptions (also known as prejudice) is actually more the province of the left brain hemisphere. :-)
Pseudolus noted that Communists tend to oversimplify complex issues and display a dogmatic, with-us-or-against-us mentality. This may go a long way to explain neoconservatism: many of its prominent "thinkers" are disgruntled ex-Communists, largely from the Trotskyite faction (sect?).
Oh, and if "disgruntled" means "dissatisfied", does "gruntled" mean "satisfied"?
From the swamps of Arkansas, Ivory Bill Woodpecker
Actually I don't expect anything but bullshit from out of you.
Hmmm, kind of like your arrogant and spiritually empty "heads I win, tails you lose" rhetorical style? If the shoe fits, wear it.
Tom DeLay's revival of the Phallus.
An awful lot of commenters are equating "science" with a belief in a particular assertion by some scientists. And alas, I fear Drifty has failed me in this regard as well.
This isn't science vs. "mysticism," or "new age thinking," or superstition -- it's science-as-dogma vs. the questioning, skeptical attitude that is central to the scientific method.
There's been mention of the mother's metaphysical speculations as to her daughter's reasons for departing this vale of tears, but among those who want to burn her at the stake I don't see any mention of the mother's verifiable claims as to facts which, if true, do not support the "AIDS-related pneumonia" claim.
The facts as claimed by the mother include: Child had clear lungs on the autopsy X-ray. Child had not been displaying symptoms of pneumonia prior to death. Coroner's office was initially unable to determine a cause of death. All of these claims may turn out to be false, but somebody is lying, and having followed the OJ trial as local news, and seen the unbelievable number of missteps made by the LAPD, I'd be disinclined to lay much money on the official version of events.
Everyone here knows that just because you read it on the Net doesn't mean it's true. I'm here to tell you that the same applies to the LA Times. So, unlike the Red Queen, I recommend trial first, sentence after.
-F
Great post, I enjoyed reading it.
Adding you to favorites, Ill have to come back and read it again later.
And on a lighter note than pure transcript trial vang , check out the funniest trial transcript ever! If it's not serious enough of a topic, well, just pretend it's the Brit's version of transcript trial vang !
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A typical dictionary definition of hypnosis states that it is: a state that resembles sleep but that is induced by suggestion. However, anyone who has tried hypnosis (and any self respecting hypnotist) will tell you that this is a very simplistic view of the subject!
A much better description comes from the Free Online Dictionary which states that hypnosis is: an artificially induced state of consciousness, characterised by heightened suggestibility and receptivity to direction. So what does this mean and how can it be used to your advantage?
Well, the subject of hypnosis has been discussed and pondered since the late 1700s. Many explanations and theories have come and gone though science, however, has yet to supply a valid and well-established definition of how it actually happens. It's fairly unlikely that the scientific community will arrive at a definitive explanation for hypnosis in the near future either, as the untapped resources of our 'mostly' uncharted mind still remain something of a mystery.
However, the general characteristics of hypnosis are well documented. It is a trance state characterized by extreme suggestibility, deep relaxation and heightened imaginative functioning. It's not really like sleep at all, because the subject is alert the whole time. It is most often compared to daydreaming, or the feeling you get when you watch a movie or read a captivating book. You are fully conscious, but you tune out most of the outside world. Your focus is concentrated intensely on the mental processes you are experiencing - if movies didn't provide such disassociation with everyday life and put a person in a very receptive state then they would not be as popular (nor would TV advertising be as effective!). Have you ever stated that a film wasn't great because you just couldn't 'get into it'???
This works very simply; while daydream or watching a movie, an imaginary world becomes almost real to you because it fully engages your emotional responses. Such mental pursuits will on most occasions cause real emotional responses such as fear, sadness or happiness (have you ever cried at a sad movie, felt excited by a future event not yet taken place or shivered at the thought of your worst fear?).
It is widely accepted that these states are all forms of self-hypnosis. If you take this view you can easily see that you go into and out of mild hypnotic states on a daily basis - when driving home from work, washing the dishes, or even listening to a boring conversation. Although these situations produce a mental state that is very receptive to suggestion the most powerful time for self-change occurs in the trance state brought on by intentional relaxation and focusing exercises. This deep hypnosis is often compared to the relaxed mental state between wakefulness and sleep.
In this mental state, people feel uninhibited and relaxed and they release all worries and doubts that normally occupy their mind. A similar experience occurs while you are daydreaming or watching the TV. You become so involved in the onscreen antics
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